The 1.5 mile walk is open to the public, and all funds raised will be donated to The ALS Association, Upstate New York Chapter, a not-for-profit organization dedicated to finding the cause and cure of amyotrophic lateral sclerosis (ALS), a devastating and fatal neuromuscular disease, also known as Lou Gehrig’s Disease. Registration begins at 9 a.m. on August 4 with the opening ceremony starting at 10 a.m.
This year’s Walk to Defeat ALS will be led by the “Honorary Person with ALS,” Chuck Thore of Grand Isle, and his Team “Thore’s Thunder.” Mr. Thore was diagnosed with ALS in March, 2011 and is a military veteran, serving in the Navy for nine years as a mechanic on the Aircraft Carrier U.S.S...He also served in the Military Police in Fallon, Nevada.
“We’re so pleased Chuck has agreed to honor this role, and we’re proud of his military service for our country. Chuck’s son Christopher is an Army Ranger, and another son James served in the Marine Reserves. It’s important to shed light on the fact that ALS impacts military veterans at twice the rate as the general public,” said Executive Director of the Upstate New York Chapter Kathy Lahey.
Unless a cure is found, more than 30,000 Americans living today will die from ALS.