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Fully Conscious, but in ‘Coma’ for 23 years: The Curious Case of Rom Houben

By: myVox send a private message
Brussels : Belgium | 2 months ago
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Views: 2,811
  • Dr Steven Lutyens: The Man Who Unlocked the Locked-in Syndrome!
    Dr Steven Lutyens: The Man Who Unlocked the Locked-in Syndrome!
    Posted by: myVox
    Dr Steven Lutyens: The Man Who Unlocked the Locked-in Syndrome! Pic ...
  • Rom Houden: Locked-in but Kicking for 23 Years!
    Rom Houden: Locked-in but Kicking for 23 Years!
    Posted by: myVox
    Rom Houden: Locked-in but Kicking for 23 Years! Pic Courtesy: sky....
  • Doctors thought that Rom Houben had been left in a vegetative state by a serious car accident in 1983
    Doctors thought that Rom Houben had been left in a vegetative state by ...
    Source: AFP
  • Rom Houben is helped by an assistant as he communicates through an adapted touchscreen which uses one finger at 't Weyerke institute in Heusden-Zolder
    Rom Houben is helped by an assistant as he communicates through an ...
    Source: Reuters
  • Belgian Rom Houben stays next to his mother Fina at't Weyerke institute in Heusden-Zolder
    Belgian Rom Houben stays next to his mother Fina at't Weyerke ...
    Source: Reuters
  • Fina Houben, mother of Rom Houben, shows undated photos of her son in Liege
    Fina Houben, mother of Rom Houben, shows undated photos of her son in ...
    Source: Reuters
  • Belgian Rom Houben stays stays next to his mother Fina at't Weyerke institute in Heusden-Zolder
    Belgian Rom Houben stays stays next to his mother Fina at't Weyerke ...
    Source: Reuters
  • Jacqueline Nicolaes, mother of Rom Houben, shows undated photos of her son in Liege
    Jacqueline Nicolaes, mother of Rom Houben, shows undated photos of her ...
    Source: Reuters
  • Fina Houben, mother of Rom Houben, stands next to her son on this undated handout photo
    Fina Houben, mother of Rom Houben, stands next to her son on this ...
    Source: Reuters
  • Jacqueline Nicolaes, mother of Rom Houben, stands next to her son on this undated handout photo
    Jacqueline Nicolaes, mother of Rom Houben, stands next to her son on ...
    Source: Reuters
Dr Steven Lutyens: The Man Who Unlocked the Locked-in Syndrome!

Rom Houben was 20 when he was involved in a gruesome car crash following which he was presumed brain dead by doctors. Today he is 46 and has dealt with the misfortune of spending more than half his life in ‘coma’. Now that the doctors have realised that he was fully conscious all through, the man himself hails this discovery as his “second birth”.

Rom’s injuries following the ill-fated crash in 1983 were so grave and his condition so serious that he was written off as having been lapsed into an “extinct” state. Doctors presumed he was reduced to the state of a vegetable, devoid of his senses, whereas the fact of the matter is that he was very much aware of his surroundings - to the extent that he was able to listen in on his doctors gradually giving up hope on him.

Thanks to the relentless efforts of coma specialists working on Rom at the Liège University Hospital, the Belgian man can now communicate with the aid of an adapted keyboard. The realisation that there was life left in Rom had first dawned on the specialists three years ago and having tracked his condition closely and after researching further on the matter they have now brought the details of the case in the open.

Employing brain scanning techniques that were not available when the accident took place, neurologist Dr Steven Laureys soon discovered that Mr Houben’s cerebral cortex was indeed active. The patient’s ability to indicate yes/no with little nudges to a computer device using his foot lead to the path-breaking discovery. Houben’s condition has since come to be known as “locked-in syndrome,” a condition in which patients, having lapsed into a state of acute paralysis cease the ability to demonstrate their consciousness.

Rom is still under constant care in a nursing home near Brussels but with his finger on a touch screen keyboard is able communicate his feelings. Doctors say his cognitive brain activity level is now near normal. Asked to state his feelings immediately following the dreadful accident, Rom articulates thus: “Powerlessness. Utter powerlessness. Frustration is too small a word to describe what I felt.”

Bodily paralysed but mentally determined to fight back, Ron was all along hopeful of a recovery. “All that time I just literally dreamt of a better life,” reminisces the man who was once an avid wind-surfer and a martial arts enthusiast. His mother too had never given up on her son and if not for her dogged determination to see her son in normal condition, Dr Laureys might not have probably attempted his ‘breakthrough’ tests on the patient. “I always knew our son was still there,” says the mother with a confidence which one can only associate with a mother.

Houben’s case has opened up a whole new way of treating coma patients with the realisation now dawning that hundreds of such patients could well be conscious but locked in a state of paralysis — unable to show their pain as discernible to a naked eye. But with Dr Laureys’ brain scanning techniques, they can now look forward to not only correct diagnosis but treatment and recovery as well.

In fact, Dr Laureys’ pioneering study has just concluded that 41 % of those believed as cases of ‘extinct’ patients have gone on to display signs of consciousness. The most important outcome of the study then could well be that doctors would now think twice before recommending switching off those life support machines from patients hitherto considered as end-of-life cases.

- myVox

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Posted By rctoddjr59 rctoddjr59 | 2 months ago
Fascinating comment. Incredible story. Great job.
Reply By myVox myVox | 2 months ago
Thanks for the compliments, rctoddjr59! And welcome to AllVoices.
Posted By AwesomeGirl AwesomeGirl | 2 months ago
Wow, interesting story. Wonder how he felt.
Posted By amhanna2 amhanna2 | 2 months ago
This is crazy. It really makes you wonder about the human soul and what we do with humans who are presumed "vegetables." Scary.
Posted By Write4Life Maryann Scarangello | 2 months ago
What a story - what an incredible doctor - and what an amazing discovery. I think you're 100% correct to say that people will think twice about flipping the switch - and after watching my sister spend weeks in a coma after an accident - Don't ever doubt people can hear you.

"I knew someday that you would fly away/ Cause love's the greatest healer to be found. / So leave me if you need to / and I will still remember / the angel flying too close to the ground."
Reply By myVox myVox | 2 months ago
I can understand the trauma of your sister, Write4Life. Thanks for your comments.
Posted By Rancho777 Rancho777 | 2 months ago
welcome to the even worse coma.
Posted By Shirley66 Shirley66 | 2 months ago
That good thing is that he is able to recover.
Posted By aquamarina217 aquamarina217 | 2 months ago
Wow, this story was incredible. It really struck a chord in me with the comment, "'I always knew our son was still there,' says the mother with a confidence which one can only associate with a mother." The love and devotion that his mother had, staying by his side for twenty years is so heart-wrenching. It made me sad to think what if he really was reduced to a state of brain inactivity and the mom kept believing her son would come back...

I think it's interesting how the doctors didn't try to get a brain scan even a couple of years after the accident. I learned in psych class that brain scans can distinguish between brain areas where brain activity is going on; this discovery would have revealed the "alive" state of Ron! But I guess they didn't have this type of technology back then. I am just so glad that they finally found out, even if it's 20 years later, because if they hadn't I think his hope would've slowly dissipated and it would've been such a terrible way to live the rest of your life. ::shivers:: I can't even think about it right now without getting scared and deeply saddened.
Posted By Rancho777 Rancho777 | 2 months ago
we're all in a coma.
Posted By Devlin229 Devlin229 | 2 months ago
Insane. I mean just imagine what it would feel like to be in his position. Great story.
Posted By NotLikely NotLikely | 2 months ago
This is shameful! Not the alleged "misdiagnosis", but the uncritical--yes, gullible!--acceptance by the media of grave accusations based on an obvious hoax (conscious or unconscious) on the part of the "facilitator", abetted (consciously or unconsciously) by this gullible doctor. "Facilitated communication" has been shown, time and again, to be bogus--just look it up in Wikipedia, Google, or any medical or scientific source. Even the simplest tests have not been tried: send the facilitator AND THE DOCTOR out of the room, tell Rom Houben a random word or phrase to type, then bring the facilitator back in (without the doctor, who might consciously or unconsciously give clues). Will Rom type the secret word? If he does, he stands to win $1,000,000 from the James Randi Foundation!
Claiming 41% misdiagnosis is preposterous and cruel. I hope this doctor is publicly debunked and humiliated...SOON!
Posted By yuyun yuyun | 2 months ago
wow.. it is a miracle!
Posted By ahol888 Adrian Holman | 2 months ago
After reading this story, I will make sure that I never pass out in Belgium.
Posted By sharma sharma | 2 months ago
Incredible story good great job
Posted By Unbounded Unbounded | 2 months ago
Well, before this story I figured we should just pull the plug on everyone in a coma.

Needless to say, my opinion has been changed. Great story.
Posted By NotLikely NotLikely | 2 months ago
@Unbounded: Your previous opinion was misguided, but unfortunately you are relying on a transparent hoax as the reason for changing your opinion.
Posted By WHiPCPL WHiPCPL | 2 months ago
that is a lot of time
Posted By punkrocker47 punkrocker47 | 2 months ago
@ Unbounded:
What if it was your family member? You honestly shouldn't say that. It really is rude. I'm just saying. If it was my family member I would never pull the plug. I couldn't live with myself.
I'm glad you changed your opinion though. It is a great story.
News Stories
 
  • News Source: News 24 | 2 months ago
    He saw his doctors and nurses as they visited him daily during their rounds; he listened to the conversations of his carers; he heard his mother deliver the news to him that his father had died...Doctors presumed Houben was in a vegetative state...
  • News Source: Seattle Times | 2 months ago
    Rom Houben's mother remembers her son's amazement when he finally started communicating again after spending 23 years locked in a paralyzed body that was misdiagnosed as vegetative. "Early on, he was surprised that the words came out of his finger,"...
  • News Source: Scoop | 2 months ago
    The School, which offers the country’s only internationally accredited professional qualifications in international trade (export and import), has been assisting companies nationwide since opening in 2007 and is about to embark on a campaign to...
  • News Source: NewKerala | 2 months ago
    The 46-year-old Rom Houben was injured in a car crash in 1983 when he was 20 and doctors took him to be in coma, although they now agree that he was conscious throughout. However, it was not until three years ago, when a specialised brain scan...
  • News Source: Asian Age | 2 months ago
    Steven Laureys, head of the Coma Science Group and neurology department at the University of Liege in Belgium, has this week spoken about a case where a car-crash victim was diagnosed as being in a coma for 23 years although he was conscious all...
  • News Source: The Scotsman | 2 months ago
    Belgian man who was diagnosed as comatose for 23 years typed out a message yesterday: he felt reborn after decades of loneliness and frustration. But a leading bioethicist has expressed scepticism that the man is truly communicating on his own...An...
Blogs
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  • Blog Source: sermons.logos.com
    For 23 years Rom Houben was trapped in his own body, unable to communicate with his doctors or family. They presumed he was in a vegetative state following a near-fatal... ... Steven Laureys, a neurologist at the University of Liège in Belgium, has
  • Blog Source: www.mizozo.com
    And since you cannot tell anyone that you can listen/hear/see, everyone thinks that you are in a coma. Rom Houben, 46, went through the experience for 23 years till it was discovered that he was actually awake. He was injured in a car crash in 1983, .
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