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Fully Conscious, but in ‘Coma’ for 23 years: The Curious Case of Rom Houben

Brussels : Belgium | Nov 25, 2009
By myVox send a private message
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Views: 3,026

Rom Houben was 20 when he was involved in a gruesome car crash following which he was presumed brain dead by doctors. Today he is 46 and has dealt with the misfortune of spending more than half his life in ‘coma’. Now that the doctors have realised that he was fully conscious all through, the man himself hails this discovery as his “second birth”.

Rom’s injuries following the ill-fated crash in 1983 were so grave and his condition so serious that he was written off as having been lapsed into an “extinct” state. Doctors presumed he was reduced to the state of a vegetable, devoid of his senses, whereas the fact of the matter is that he was very much aware of his surroundings - to the extent that he was able to listen in on his doctors gradually giving up hope on him.

Thanks to the relentless efforts of coma specialists working on Rom at the Liège University Hospital, the Belgian man can now communicate with the aid of an adapted keyboard. The realisation that there was life left in Rom had first dawned on the specialists three years ago and having tracked his condition closely and after researching further on the matter they have now brought the details of the case in the open.

Employing brain scanning techniques that were not available when the accident took place, neurologist Dr Steven Laureys soon discovered that Mr Houben’s cerebral cortex was indeed active. The patient’s ability to indicate yes/no with little nudges to a computer device using his foot lead to the path-breaking discovery. Houben’s condition has since come to be known as “locked-in syndrome,” a condition in which patients, having lapsed into a state of acute paralysis cease the ability to demonstrate their consciousness.

Rom is still under constant care in a nursing home near Brussels but with his finger on a touch screen keyboard is able communicate his feelings. Doctors say his cognitive brain activity level is now near normal. Asked to state his feelings immediately following the dreadful accident, Rom articulates thus: “Powerlessness. Utter powerlessness. Frustration is too small a word to describe what I felt.”

Bodily paralysed but mentally determined to fight back, Ron was all along hopeful of a recovery. “All that time I just literally dreamt of a better life,” reminisces the man who was once an avid wind-surfer and a martial arts enthusiast. His mother too had never given up on her son and if not for her dogged determination to see her son in normal condition, Dr Laureys might not have probably attempted his ‘breakthrough’ tests on the patient. “I always knew our son was still there,” says the mother with a confidence which one can only associate with a mother.

Houben’s case has opened up a whole new way of treating coma patients with the realisation now dawning that hundreds of such patients could well be conscious but locked in a state of paralysis — unable to show their pain as discernible to a naked eye. But with Dr Laureys’ brain scanning techniques, they can now look forward to not only correct diagnosis but treatment and recovery as well.

In fact, Dr Laureys’ pioneering study has just concluded that 41 % of those believed as cases of ‘extinct’ patients have gone on to display signs of consciousness. The most important outcome of the study then could well be that doctors would now think twice before recommending switching off those life support machines from patients hitherto considered as end-of-life cases.

- myVox

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Dr Steven Lutyens: The Man Who Unlocked the Locked-in Syndrome!
Dr Steven Lutyens: The Man Who Unlocked the Locked-in Syndrome! Pic Courtesy: sky.com
Posted By rctoddjr59 rctoddjr59 | 9 months ago
Fascinating comment. Incredible story. Great job.
Reply By myVox myVox | 9 months ago
Thanks for the compliments, rctoddjr59! And welcome to AllVoices.
Posted By AwesomeGirl AwesomeGirl | 9 months ago
Wow, interesting story. Wonder how he felt.
Posted By amhanna2 amhanna2 | 9 months ago
This is crazy. It really makes you wonder about the human soul and what we do with humans who are presumed "vegetables." Scary.
Posted By Write4Life Maryann Scarangello | 9 months ago
What a story - what an incredible doctor - and what an amazing discovery. I think you're 100% correct to say that people will think twice about flipping the switch - and after watching my sister spend weeks in a coma after an accident - Don't ever doubt people can hear you.

"I knew someday that you would fly away/ Cause love's the greatest healer to be found. / So leave me if you need to / and I will still remember / the angel flying too close to the ground."
Reply By myVox myVox | 9 months ago
I can understand the trauma of your sister, Write4Life. Thanks for your comments.
Posted By Rancho777 Rancho777 | 9 months ago
welcome to the even worse coma.
Posted By Shirley66 Shirley66 | 9 months ago
That good thing is that he is able to recover.
Posted By aquamarina217 aquamarina217 | 9 months ago
Wow, this story was incredible. It really struck a chord in me with the comment, "'I always knew our son was still there,' says the mother with a confidence which one can only associate with a mother." The love and devotion that his mother had, staying by his side for twenty years is so heart-wrenching. It made me sad to think what if he really was reduced to a state of brain inactivity and the mom kept believing her son would come back...

I think it's interesting how the doctors didn't try to get a brain scan even a couple of years after the accident. I learned in psych class that brain scans can distinguish between brain areas where brain activity is going on; this discovery would have revealed the "alive" state of Ron! But I guess they didn't have this type of technology back then. I am just so glad that they finally found out, even if it's 20 years later, because if they hadn't I think his hope would've slowly dissipated and it would've been such a terrible way to live the rest of your life. ::shivers:: I can't even think about it right now without getting scared and deeply saddened.
Posted By Rancho777 Rancho777 | 9 months ago
we're all in a coma.
Posted By Devlin229 Devlin229 | 9 months ago
Insane. I mean just imagine what it would feel like to be in his position. Great story.
Posted By NotLikely NotLikely | 9 months ago
This is shameful! Not the alleged "misdiagnosis", but the uncritical--yes, gullible!--acceptance by the media of grave accusations based on an obvious hoax (conscious or unconscious) on the part of the "facilitator", abetted (consciously or unconsciously) by this gullible doctor. "Facilitated communication" has been shown, time and again, to be bogus--just look it up in Wikipedia, Google, or any medical or scientific source. Even the simplest tests have not been tried: send the facilitator AND THE DOCTOR out of the room, tell Rom Houben a random word or phrase to type, then bring the facilitator back in (without the doctor, who might consciously or unconsciously give clues). Will Rom type the secret word? If he does, he stands to win $1,000,000 from the James Randi Foundation!
Claiming 41% misdiagnosis is preposterous and cruel. I hope this doctor is publicly debunked and humiliated...SOON!
Posted By yuyun yuyun | 9 months ago
wow.. it is a miracle!
Posted By ahol888 Adrian Holman | 9 months ago
After reading this story, I will make sure that I never pass out in Belgium.
Posted By sharma sharma | 9 months ago
Incredible story good great job
Posted By Unbounded Unbounded | 9 months ago
Well, before this story I figured we should just pull the plug on everyone in a coma.

Needless to say, my opinion has been changed. Great story.
Posted By NotLikely NotLikely | 9 months ago
@Unbounded: Your previous opinion was misguided, but unfortunately you are relying on a transparent hoax as the reason for changing your opinion.
Posted By WHiPCPL WHiPCPL | 9 months ago
that is a lot of time
Posted By punkrocker47 punkrocker47 | 9 months ago
@ Unbounded:
What if it was your family member? You honestly shouldn't say that. It really is rude. I'm just saying. If it was my family member I would never pull the plug. I couldn't live with myself.
I'm glad you changed your opinion though. It is a great story.

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    Rom Houben, now 46, was trapped in his own world, suffering from a condition known as locked-in syndrome, said Steven Laureys of the University of Liege. Locked-in Syndrome is a neurological condition in which the patient is aware of his/her...
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    io9 | 9 months ago
    a man spent 23 years paralyzed but conscious while his doctors believed he was in a vegetative state . And his situation might be more common than we'd like to think. When he was 20 years old, Rom Houben was involved in a car accident that left him...
  • Doctor in 'coma' case re-examining dozens more patients

    The Guardian | 9 months ago
    The doctor credited with giving a Belgian man a new lease of life after he was wrongly believed to be in a coma for 23 years has said he is re-examining dozens of other cases. Rom Houben lay imprisoned in his own body for more than two decades before...
  • Coma patient's second birth

    Mail and Guardian | 9 months ago
    He saw his doctors and nurses as they visited him daily during their rounds; he listened to the conversations of his carers; he heard his mother deliver the news to him that his father had died...Doctors presumed Houben was in a vegetative state...
  • I always knew he could understand, says mother of man locked in 'coma'

    The Guardian | 9 months ago
    It was 2am on a bleak Belgian Sunday in November when Fina Nicolaes received the news that every mother dreads. Her son Rom, 20, was in hospital in Liège with life-threatening injuries after a Saturday night car crash. The phone call that woke her...
  • Man in false 'coma' plans memoirs

    The Courier-Mail | 9 months ago
    Since 2006, when his true condition was correctly diagnosed, he has regained enough coordination to allow him to use a finger, when aided, to use a special computer keyboard, Prof Laureys said. "He intends to write about his experiences and I am...

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