I am a grandmother who lost a grandchild to Trismony18 this past September 2009. God allowed Jayda to bless us with her presence and allowed us to love her for 20 days. I felt sorry that she had to leave yet while Jayda was here she taught so many people a lesson on the "will to live". She fought to stay but God loved her more so He took her home away from all the pain. I felt sorry and hurt that she was born with this horrible disease until I read two artilces on children born with abnormalities; one more severe than the other.
When I found out that my daughter may have a child born with a health problem I did not know if I could handle it. You see, I hate failure in myself. The moment I first saw Jayda it was instant love and thankfulness that she was with us. My heart ached when I saw the respirator tube running down her little throat and all the tubes/wires hooked up to her. I hated it when the doctor kept saying she would not make it through the day, let alone the night. Each day it was the same story as the doctors said her chances of survival were so thin. My daughter and her husband prayed without ceasing as I did too. I asked myself was it fair of me to want her to stay if she was going to be in so much pain or suffering most of her life. My answer was "no" because it would not be fair to her. The doctors gave up but the nurses in the neo center did not. My daughter and her husband told the doctors to treat Jayda like any other baby that was born without healthy. Jayda was surviving on one lung, a weak heart, kidney problems, vision problems and possible other internal problems. She would require open heart surgery in 4-6 months if her heart was strong enough. God answered my daughter and her husband's prayer by letting Jayda come for about a week with breathing and feeding machines. Jayda hated having a wet diaper and don't be late feeding her because she would make such a fuss.
Unfortunately one day, at 20 days old, Jayda went into cardiac arrest. She was rushed to the hospital by ambulance but died shortly afterwards. My daughter, her husband and myself took turns hold our little princess for about an hour after she passed. She took her last breath while being craddled in her mother's arms. The Chaplain of the NE Georgia Medical Center, Gainesville, GA stated that our faith had renewed his faith. Just about every nurse in the neo center came to say good-bye to Jayda. Jayda was my tenth grandchild and I miss her so much.
I share this story to tell all that there is no such thing as not being able to love anyone who appears different or at an disadvantage. The only abnormalities lie within our blocked visions and selfish desire to be perfect. Love comes in many shapes, forms, and race. Love everyone like it's your last day on this earth. Being able to accept things not quite understood is a blessing.
The first story I have attached is about the baby born in India with 2 faces, 2 set of eyes, two noses, and two mouths on one head/body. She is adorable and I hope she is going to be ok. The rarest malformations in humans is diprosopus, with two faces, one head, and one body. Since 1884, there have been only 35 reports of diprosopus in the world medical literature.
The second story is about a 1 year old pregnant girl in China. I do not know how true it is but I've attached a copy of the picture I received. I believe it; you may not. Shocking event for Chinese medicine, which found that a 1 year a girl is pregnant. Mengru Kang was taken to the hospital after her unexplained stomach was swollen. After a ultrasound, the doctors were amazed that the girl has a tiny baby in the womb; the child's twin brother. They believe the tot is her parasitic twin. Doctors say that the embryo was not caught in the womb and had found another place to grow. Little Kang Mengru, from China, will undergo a Cesarean delivery and will suffer .This unusual phenomenon, very rarely is numneste "fetus in fetus" and can be seen once every 500,000 pregnancies.
You can see a picture of Jayda at: http://4jmt.blogspot.com