Well, I got the results for the Lyme Disease test - Negative. This really doesn't surprise me. It was just the ELISA test anyway. I am trying to remain grounded with this whole topic. I don't want to totally dismiss it as I know how unreliable the tests are, and I also want to make sure that I am not trying to convince myself that I have Lyme Disease. So I guess you could say I'm sitting on the fence... It is difficult to find a happy medium though. There is a big part of me that is so sick of doctors appointments and research, and can't really be bothered anymore. However, I also have a strong gut feeling that something is being missed. Maybe I'm wrong, but I would hate to find myself a lot worse in the future and then to find out that we have missed something. My reason for starting to pursue all of this again was because I have been getting more and more symptoms, eg. joint pains, especially my knee. Also I can't help but feel that my rash is a big clue to whatever is going on. I agree that some of the bigger spots are acne, however it's all the other different ones I get that I question.
So I was with the tropical specialist on Monday. He says that there is nothing telling us for definite that I have Lyme disease. He then gave me the option to try the treatment anyway. I agreed with this. I really feel it is worth a try. Especially as I have seen a small improvement with my energy on the minocycline I was on for my rash. He said if he was in my position he would be doing the exact same thing, and in fact it's something he would have tried three years ago. I agree I should have been tried on a course of doxycycline at the beginning of all of this.
I started a 6 week course of doxycycline yesterday. I will write a diary of my symptoms to keep note of any changes and I also have to keep in contact with the tropical specialist on a weekly basis. I am concerned about what effect this is going to have on my stomach. I have spent the last few months working hard on getting things right and it would be a terrible shame if I went back to square one where my stomach is concerned. I am being extra careful now and stepping up the game with probiotics, etc...
The tropical specialist took two readings of my blood pressure and it was high. It was also high the last time I saw him. He said I need to watch this and that I have to get it taken again next week. I wonder is this what is making me feel so light headed and dizzy. I know it's usually low blood pressure that causes lightheadedness, but I'd say this is what it is. Hopefully it will be gone down next week. I have to visit my other GP next week to sort out hormonal and adrenal issues so I can get it checked then.
That's all my news on the treatment front.
Hope you're all well...
Treya : )